DOT +14

Mom and Patrick arrived at the clinic today and went through the normal routine. After the labs were taken, the PA came by to discuss the results. She told them that both Patrick’s white count and platelets had slipped slightly. She was a little surprised but this is the nature of the beast!

Taylor got a chance to visit the clinic and brought Mom and Patrick lunch, thanks to Taylor! I am so upset I haven’t been able to get over to Durham this week, I am hoping I will make a trip over there this weekend!!

Patrick had so many infusions today that he had a double decker pump. He received three different antibiotics (protocol since fever Tuesday), magnesium, and potassium all at once. We are thankful that they could be synced, if not, Mom and Patrick could still be at the clinic!

Ever since we started this process, the clinic has more than stressed how important it is for the patient not to fall, as falls can be devastating with such a weakened system. There is a bulletin board about falls and a calendar noting the last fall. If a patient falls, they receive a bright yellow wrist band and have to be transported everywhere via wheelchair. Today Mom hit a patch of water and slid down the hall like heading to first base... thank goodness it was Mom and not Patrick. She didn't have to ride in a wheelchair, wear a yellow wrist band, or get posted on the board, but she was humiliated when they had to file an accident report. Patrick has had fun teasing her tonight!! 

Mom and Patrick are back at the apartment, they have had a quiet night. After dinner they walked around the apartment grounds and were humored when they saw a neighbor walking her cat on a leash. This made the walk a little more bearable for Patrick.

Our family cannot thank you enough for your support. Patrick really appreciates the cards. It is a treat to have “real mail”!

Xoxo,

Mary

For I am the Lord, your God, who takes hold of your right hand and says to you, do not fear; I will help you. 

-                 Isaiah 41:13

L    Labs from today: 

Test	Patrick	Normal Range
White Blood Cell Count	0.1	3.2-9.8 (this will go to zero)
Hemoglobin	10.5	13.7-17.3 (they try and keep it above 8.0)
Platelet Count	24	150-450 (they try and keep it above 10)